Topic Replies Activity
Patient Leader Introductions!

Welcome! We’re so glad to have you here :slight_smile: You’re joining a community made up of the most inspiring people you’ll ever meet. Take a moment to introduce yourself. Let us know where you’re from, what you advo…

645 September 17, 2022
Patient Leader Bulletin Board

Are you looking for other Patient Leaders to help with a project? :raising_hand_man:t4:🙋🏼 Maybe you want to profile other’s stories on your blog or podcast, or perhaps you are working on a local event that you’d love …

73 July 23, 2022
Terms of Service, Privacy Policy, Cookie Policy, Community Rules and Support

Please visit the links below for more information on the Social Health Network’s policies and notices that can affect your rights, obligations, and remedies in connection with your use of the Site. Terms of Service - ht…

2 July 18, 2022
Humor for Patient Leaders 101 84 September 27, 2022
How To Leverage Your Health Story | Media Pitches 127 September 25, 2022
Valuing Your Expertise As A Patient Leader 177 September 22, 2022
TMJ/TMJD & ICR Awareness 2 September 21, 2022
Is "weeping Eczema" a "Rare Condition"? Seems like I am not seeing much on this and I have developed it. 3 September 21, 2022
Patient Advocacy 5 September 14, 2022
From Deck to Skills: Preparing Your First Keynote 59 September 13, 2022
Legislative Advocacy for Beginners: Your Sixty Second Advocate Pitch 44 September 13, 2022
Best Practices for Engaging Your Community 76 September 13, 2022
FTC Guidelines for Patient Leaders 33 September 11, 2022
Help with "symptoms", Length of episodes, how long it took for a proper diagnosis of IBS and/or Colitis 4 September 7, 2022
Thrilled to see a few new activities! 9 August 28, 2022
Artistic "Nurturing" How it has a positive effect on many! w/ Chronic Illnesses 3 August 27, 2022
Why is it so difficult to ASK family/friends for help when you really can't do things for awhile for yourself? 3 August 27, 2022
Do Not Be Afraid to SPEAK UP & SPEAK OUT! 35 August 23, 2022
I see several threads have been deleted... 2 August 18, 2022
How to "complete" the badges for LinkedIN, Facebook & Twitter 2 August 6, 2022
Will we be seeing "New Activities" in the near future?! 4 August 3, 2022
You're in the checkout line and turn around to someone with no mask on.. What would you do? 22 August 3, 2022
Who is advocating for CCI? ( instability) 3 July 6, 2022
North Carolina Patients 5 July 5, 2022
Fibromyalgia Research Survey 5 May 27, 2022
Badges Functionality 3 May 27, 2022
Chronic Illness Connections 3 March 19, 2022
Thursday Thoughts: If you could go back to when you were diagnosed what would you tell yourself? 38 December 28, 2021
From Asthma To Anaphylaxis: Food Allergy Symptoms 3 December 28, 2021
Share YOUR story! 5 December 28, 2021